In the past eight years, I have handed one of my children over to a surgeon over 30 thirty times, sometimes waiting in a waiting room with others and sometimes waiting all alone.
In the past eight years, I have handed one of my children over to a surgeon over 30 times, sometimes waiting in a waiting room with others and sometimes waiting all alone. At the young age of 4, 3 and 1 our “big” kids were asked weekly, if not daily, to sit in a doctor’s office for hours at time quietly obeying, being kind and being helpful. Words like g-tube, oximeter, oxygen and therapy became common everyday words around our house.
On more than occasion, I have spent the day in bed crying because I wasn’t sure if my child would live another day and getting out of bed seemed like too much...and I’m not sure a four-year-old can comprehend why in the world their mama is so sad. Why their mom would spend hours upon hours researching medical terms, why their mom would get on a plane or be gone six weeks at a time just to go to another hospital with their brother.
My sweet boy has been on a plane countless times, but never without the end destination being a doctor or hospital. So, when complete strangers find it in themselves to provide an entire week full of joy for our family, the tears cannot help but run down my face. It is as if someone is holding my hand in the waiting room where I was once all alone…as if an unexpected angel from heaven came to comfort me when the doctors said the words, “your son might go to heaven earlier than expected.”
For one full week we will not wait for doctors. For one full week ice cream for breakfast will be expected and for one full week the heart aches of hospitals and the unknowns of the future will be put on hold as joy and memories become the goal. The only expectation, for both young and old, will be to be full of awe and wonder. In just six days from today we leave to spend seven days in Orlando, Florida and not because it was earned, but simply because a stranger saw fit to love a family like ours.
I could not be more humbled and thankful for this sweet gift that has been given to us. Sweet friends, I cannot wait to take you on this journey with us because I want you to know that even the smallest acts of kindness truly matter and people are more kind and generous than we sometimes allow ourselves to realize and behind every organization, every cause and every statistic is a person, a story and an opportunity to truly love.
Thank you so much to @makeawishnm for granting our sweet Declan’s wish.